There are around 100 new cases of Spinal Muscular Atrophy each year in the UK alone, and approximately 1 in 6,500 children are affected. SMA is autosomal recessive which means for a child to be affected both parents must be a carrier of the faulty gene.
Ally had type 1 SMA, there are 3 types with type 1 being the most severe.
Ally lost her fight with SMA just 12 days after being diagnosed at the age of 6 months old. Emma and Karl set up a charity in Ally's name to offer their help to families going through what they went through but offering the help they never got.
Ally would have been 3 September 9th 2011.
This blog entry is to help spread awareness of this condition. Please visit the links below to get more information and to find out ways that we can help Emma and Karl help other families going through what they went through with little Ally.
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